Is there someone I can talk to about my situation?

Absolutely. If you have questions about MS — what it is, how it’s diagnosed, how it’s treated, what might happen or any other issues that are of concern to you, call 1-800-344-4867 to speak to one of our information specialists.

Why can’t the doctor tell me what’s wrong with me?

MS isn’t an easy disease to diagnose. In the first place, there is no single test for multiple sclerosis. Second, the diagnosis cannot be made until the doctor finds evidence of two episodes of disease activity in the central nervous system that have occurred at different points in time — which means that confirming the diagnosis is sometimes a waiting game. And third, most MS symptoms can also be caused by other conditions, which means that the doctor needs to rule out all other possible explanations. Very often, when a central nervous system problem, such as MS is suspected, many tests will need to be done before the diagnosis is confirmed.

Are there any treatments available to help me in the meantime?

  • If your doctor believes — based on your medical history, physical exam, and test results — that you are at high risk of developing MS, there are medications that have been shown to delay the development of clinically-definite MS.
  • If you’re experiencing symptoms that are making you uncomfortable or interfering with your everyday activities, be sure to discuss them with your doctor. Many symptoms can be successfully managed even without a confirmed diagnosis.
  • If you’re feeling overwhelmed or stressed out by your symptoms or the uncertainty of the diagnosis, consider talking with a counselor about it. The Society can refer you to a professional in your area for help in dealing with this difficult situation.

What should I say to my employer about my medical problems and absences from work?

It’s important to keep in mind that the information you share now may affect your employment situation in the future. Before sharing any details with your employer or colleagues, contact the National MS Society for information about your rights in the workplace or check out the employment information on our website.

 

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Source: National MS Society